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Coats' Disease Resources - Links

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Links to related sites

Name:Blind Children's Fund
Citation:www.blindchildrensfund.org
Description:Caring for, working with, and educating infants and young children.
  
  
Name:Children's Vision Awareness Day
Citation:Sight for Students program of Vision Service Plan
Description:Every child deserves to see the world clearly. Children's Vision Awareness Day is designed to educate the public on the important role proper vision plays in a child's academic success and development.
  
  
Name:Classification and Management of Coats' Disease: The 2000 Proctor Lecture
Citation:American Journal Of Opthalmology, March 2001
Description:A thirteen page article that describes various trials and treatment techniques, and gives an overview of Coats' Disease.
  
  
Name:Coats' disease of the retina (unilateral retinal telangiectasis) caused by somatic mutation in the NDP gene: a role for norrin in retinal angiogenesis
Citation:Human Molecular Genetics, 1999 Oxford University Press
Description:Graeme Black discussion of genetic component of Coats' disease, specifically with the NDP gene.
  
  
Name:Digital Angiography in Opthalmology
Citation:Bio-Medical Physics & Bio-Engineering, University of Aberdeen.
Description:Pictures of fluorescein angiograms.
  
  
Name:Fundus photograph of telangiectatic vessels on the surface of the detached retina
Citation:Medpix
Description:Picture of telangiectatic vessels on detached retina with Coats' Disease.
  
  
Name:Handbook of Ocular Disease Management
Citation:Coats' Disease and Leber's Miliary Aneurysm.
Description:Signs and symptoms, and pictures of the exudate.
  
  
Name:Has your pediatrician checked your child?
Citation:Joey Bergsma Retinoblastoma Awareness Page
Description:Infants need an eye dilation exam to catch a tumor or cataract.
  
  
Name:How The Eye Works
Citation:Jules Stein Eye Institute at UCLA
Description:Informative picture and text.
  
  
Name:Institute For Families
Citation:www.instituteforfamilies.org
Description:Offers counseling and support for families facing the devastating diagnosis of visual impairment in their child.
  
  
Name:Liz's Coat's Disease Blog
Citation:coatsdisease.blogspot.com
Description:Liz shares her experiences since her son Joey was diagnosed at the age of four.
  
  
Name:National Organization for Rare Disorders
Citation:www.rarediseases.org
Description:Representing patients and families affected by rare diseases.
  
  
Name:OMIM database entry for Coats' Disease
Citation:Online Mendelian Inheritance in Man, OMIM (TM). Johns Hopkins University, Baltimore, MD. MIM Number: 300216: 11/4/1999.
Description:Technical information about the genetic mutations that cause Coats' Disease and Norrie Disease.
  
  
Name:Orphanet entry on Coats' Disease
Citation:Dr. Alessandra Del Longo, September 2002.
Description:Comprehensive medical description of Coats. Discusses treatment techniques for different phases of the disease. This site is by doctors, for doctors. If your doctor is unfamiliar with Coats' disease, you might consider sharing this information.
  
  
Name:Toxocariasis
Citation:Toxocariasis Fact Sheet
Description:Information about Toxocara canis (from dogs) and Toxocara cati (from cats), which are sometimes mistaken for Coats' Disease.
  
  
Name:Vision Simulator
Citation:Pharmacia Corporation
Description:See what a Coats' patient sees by using this Macular Degeneration simulation. Our son says this simulation is accurate except his dot is red and orange instead of black. This simulation requires Macromedia Flash Player to work. If your computer is missing Flash Player, you will not see the simulations' control panel.
  
  
Name:Whonamedit.com
Citation:whonamedit.com
Description:Quick definition of Coats' Disease. This mentions the progression of the symptoms.